Morgellons disease.
Mysterious disease in which different-colored fibers pop out of the afflicted person’s skin.
Post date: Friday, May 12th, 2006.
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23 Responses to “Morgellons disease.”
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At 8:29 pm on May 23rd, 2006, M wrote: #
I had the same symptoms described for Morgellons disease and my doctor prescribed Hydroxyzine HCL 10 MG. and Clobetasol Propionate ointment 0.05% The symptoms of itching and burning disappeared in 10 days.
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At 3:42 pm on July 12th, 2006, Anonymous wrote: #
Update for May23,2006 on prescription of Hydroxyzine HCL 10 MG. and Clobetasol Propionate ointment 0.05%.Here it is July12 ,2006 and I am getting small symptoms after being off medication since May 23.I am keeping the disease from reoccuring with the same medication.I will keep you posted.
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At 5:02 am on August 17th, 2006, Alcuin Bramerton wrote: #
The questions being asked about Morgellons disease are disturbing. Is it the result of covert bioterrorism? Is it a new stress-induced, psychosomatic epidemic? Is it a spiritual disease? Is it being brought on by fear? Is Morgellons disease a physical epiphenomenon of war-on-terror paranoia? Why is it peculiarly American? And why is it specifically clustered in Texas, California and Florida?
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At 3:54 am on October 24th, 2006, Tania wrote: #
My name is tania and I have suffered from this disease for 2 years now, both my daughters and my husband have this as well but they dont have the lesions like me. I live in a small country town in Victoria Australia and I worked in a Pharmacy and I have seen a lot of people with this same thing. THis thing is very contagious if you ask me and very frightening.I think it is all over the world but unless you have the lesions you probably dont know you have it.Something really stange is going on. If it wasnt for the internet I probably would have killed myself by now.
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At 2:56 am on November 10th, 2006, Gillian wrote: #
My name is Gillian, I live in Melbourne Australia. I have suffered the symptoms of Morgellons for a few years now.
Tania I am so sorry to hear that your daughters have this. I do not have children.
It is now 2 years since I learned about Morgellons (which explained my terrible symptoms, particularly the hair/fibers). I have tried my heart out during this 2 year period to have Morgellons exposed, either via media or whatever means. 18 months ago I was on a talk back radio show in Western Australia - talking about Morgellons, but since then nothing further.
I have never been given a diagnosis of DOP (Delusions of Parasitosis). I did have Rickettsia/Spotted Fever Group and have drank a river of antibiotics, but my “morgies” symptoms will not go away, and the psychological distress involved with this is awful. Medical mistreatment by the medical community is yet another topic of debate!!
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At 8:29 pm on November 28th, 2006, Prichard wrote: #
If you are interested in Morgellons Disease or experience Morgellons symptoms, I would like to invite you to participate in the Morgellons Disease Information Community and Message Board at http://www.morgellonsite.com
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At 10:35 pm on December 3rd, 2006, joseph wrote: #
I had morgellons in 1993 and 1994.I cured myself using pine oil on skin everyday for
a really long time.It took a long time for
results.I kept at it.I have been fiber free for 12 years.
It also helps to shave your head.Keep your
environment superclean,so you don’t reinfect yourself.I cleaned with pinesol.
I don’t know if the disease has evolved the past 12 years.American Indians used
pine.
Other treatments probably work.The important things are clean environment
and build up your immune system.
If I could beat it on my own,others can
do it with support. -
At 8:49 am on December 5th, 2006, joseph wrote: #
I’m asking everyone to petition the Google
foundation to research Morgellons.Does anybody want to run with that idea? -
At 2:45 am on December 23rd, 2006, Lyle Hut wrote: #
for morgellons disease information and support check out http://www.morgellonsite.com
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At 7:05 pm on February 28th, 2007, Smileykins wrote: #
Considering that the CDC’s task force is trying to look into how this situation developed, all the “independent scientific research” needs hard, hard, scrutiny, and whatever course of action neccessary, applied from the people who are in these patients’ lives. Due to their notable problems with cognitive skills, “morgellons disease” patients aren’t in a position to recognize scientific misconduct.
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At 6:11 am on March 9th, 2007, Sean wrote: #
Thank God that i am not the only one. I thought I was loosing my mind. I have had ALL of the symptoms associated with this ds order for almost 4 years now. Life has been almost unbarible. Everyone I try to talk to about it thinks I am insane. Early on I bounced from doctor to doctor with no little to no results. The reaction I get leaves me feeling depressed and more helpless. I have gone from being an popular extrovert that exuded self-confidence and optimism to a shell of a man, depressed, isolated and continuously doubting sanity. I know that I have a mental psycosis, but it a a result of my phsical aliments. I started web searches last year and until tonight I thought I was alone and possibly insane. My condition has been pretty cyclical. Symptoms usually last for 4-5 months and when the sores heal, I get scars that look red, swollen and infected (the scar are tender and hideous). The symptoms remain dormant for a few weeks and then it starts again. The scars become pustuiles, resembling extra-large pimples, boils or abcesses. Everytime it reoccurs it gets worse and worse. It spread, one becomes two and the sore seen to fallow my viens/arteries. What was once confined to my thighs, has now propegated allover my body. And finally, it has moved to my face and scalp. I had tried countless remedies, medical, home and psychiatridc. NOTHING works. I have almost given up. I don’t tell people anymore, I stay home as much as possible and I am pretty sure that whatever the hell this is, it is slowly and steadily killing me. I don’t sleep, I have no appetite, I can’t work, my teeth are falling out, I am scarred (scared, too), My skin crawl and hurts all the time. Sure it’s MENTAL, but trust me it is DEFINITLY PHYSICAL and until tonight I thought I was the only one that was suffering the crippling effects of this disease/parasite. I feel like after 4 years someone finally understands. So if I am CRAZY, and this imagined disorder has consumed my entire being with no remedy save death, at least I am not alone…
I want HELP, I need HELP. I am TERRIFFIED, DESPARATE and will to try ANYTHING. But can I do if my family, friends and doctors dismiss me as a psychotic skin-picker. I feel like I am already DEAD, only my body is still hanging on. I am just waiting for it to catch up, and at this rate it will be sooner than later. -
At 9:58 am on May 1st, 2007, Gracie wrote: #
Hi all. I don’t have this disease but have one that took ME 50 years to diagnose. Most doctors had never heard of my genetic disease! I am sorry to say but seems our worst enemy beyond the disease itself are doctors. Good luck in finding one that does not think you are a hypochondriac or just there for drugs.
I looked up the drugs Hydroxyzine HCL and Clobetasol Propionate ointment and found these are merely useful to treat symptoms and not to eradicate the underlying cause. Its pretty apparent that this disease is caused by parasites, most likely several at the same time. Some doctors report successful outcomes with the Lyme disease treatment for Morgellons. The pine oil sounds promising but you all need to remember that antibiotics are not healthy. Make sure whatever treatment you choose, you do a total body cleanse, especially the colon. While usually summed up as (something) in his weight loss book, Kevin Trudeau approaches most of what ails the common person as the result of modern living and how to combat it. IF interested in that, get a cheaper used copy on Amazon. What he says is for real even if his presentation is that of a dishonest salesman. I am wondering how tea tree oil would work as it has mixed properties, but don’t drink it as it can cause neurological damage.
Good luck to you all and I am planning on incorporating this disease in my next book! I hope it sheds some light on the problem.
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At 2:22 am on May 15th, 2007, LOLITA wrote: #
I have had…Morgellons, as has my husband, for 3 years now. We have been called crazy, drug addicted, you name it. By family, “friends”, strangers. I have over 400 lesions all over my body. Where I once earned a living as a professional model I now hide, shop and run errands late at night and fight the depression, pain, shame and lack of answers in an ever more secluded world. I think I can safely speak for most of us who suffer from this dread nightmare when I say I’d much rather have the truth, some answers, even the faintest of hopes that whoever/whatever is responsible for this recognizes their mistake and will disclose anything that might help us rather than seeking to sue,etc.life is worth more than money!
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At 10:54 am on May 25th, 2007, carl leach wrote: #
I have had Morgellons ever since 1985. At that time I lived in the Pittsburgh area. I through the whole “its your imagination routine” many years with the doctors until I was at the point of taking a gun and shoot the next doctor - dermatologist in the kneecap, and when he screamed out in pain, I was going to ask him, “What’s wrong?” and when he would say, “You just shot me in my leg!”, I was going to tell him it was his imagination. Today the movie “Bug” comes out, with Ashley Judd and I want to see if they tie it in with Morgellons or if the purpose of this is to debunk the awareness of Morgellons. I now live in the DC area and if I knew of a way to pass it on to the congressmen, they would get the ball rolling, before this would reach epedemic proportions (just a joke - I think),
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At 7:58 pm on November 13th, 2007, roy wrote: #
I believe morgellons is related to lymphatic filariasis. I successfully treated the parasites with paraclear from sweetsunnah.com. Its a combination of about 19 herbs effective against parasites. I was also drinking a lot of pau d’arco tea at the time. Another very important product is carnivora (venus flytrap extract). Currently, I am dealing with the bacteria has a symbiotic relationship with the parasites. You can email me at rwilson@mymed411.com
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At 12:21 pm on December 11th, 2007, perri ann wrote: #
please help me i am so sick i have had moegellons for 2 yrs i live in ny and cant find any doctor to help me(845)-216-4262
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At 9:36 pm on January 16th, 2008, Tom wrote: #
I saw pictures of this at http://www.timesocket.com/disease/morgellons-disease-pictures-and-story/
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At 9:40 pm on January 25th, 2008, Anonymous wrote: #
I have had this condition for several years. I seem to have all rhe symptoms. I only learned about it the other day when Kaiser California announced a plan to study it. I have been to a couple of doctors but after the fibromyalgia episode I refuse to put myself in that kind of a position.
I lived in San Francisco in the 80′ late 90′ I spent three years in Vancouver BC. I am a nurse and it seems they are the number one sufferers.
I have tried various self treatments. The disease is mainly confined to my scalp. The amazing thing is I suffer from the nightmares,insomnia and was also diagnosed with ADHD. These symptoms are worse for me than the skin problem.
E. -
At 5:40 am on March 23rd, 2008, Sean wrote: #
Hi there,
I am a Filmmaker from Sydney, Australia and would like to help in getting the message out there.
Regards,
Sean
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At 10:56 pm on April 13th, 2008, Mary wrote: #
Hi Sean , My name is Mary a Naturopath in Qld . I have been suffering M for 2 years now . It finally hit home @ Xmas ‘07 and realized it was M so I have used my Frequency Specific Microcuurent for 2 months now ,Jan amd Feb. Found tremendous releif and may have broken it reproductive cycle . This last month March took Homeoopathic Silica 30C to rid the body of the invader ,let it run it coarse,just about gone now , and last week I recieved my sulphur soap from America and use it as a preventitive caution, since I think this “blight” is in the environment.
I am now asisting another suffer in Australia , and another friend of mine I have seen may have it to …suspect got iot thru tattooing.
You can contatc me : runes@ozemail.com.au
I hope to hear from you , as I feel I have made a major thru in eradicting this sci -fi type nightmare in short order after trying just about everything under the sun in the past with no avail .
Cheers Mary -
At 6:01 am on April 27th, 2008, Marie wrote: #
Hi Im in New Zealand. was shocked to stumble across this disease on the web 2wks ago!! i have been suffering with most of these symptoms for 7yrs. tried everything natural medicines, para herbs, colon cleanses and with a good gp and dermatologist, steroids, antibiotics etc..this organism? is incredibly prolific. my worst symptom has always been insomnia due to itching. recently my dermat told me to try peanut oil after all else failed, he said it used to be used in england for skin probs.i have had amazing results at clearing lesions in 3 days with applying peanut butter at night,i leave on all night and use old clothes. it is anti-pruritic. he says it is controlling my problem but not curing. but im sleeping and have more energy and can now venture outside. i was pre-school teacher.seems diff things work for diff people. this is cheap and natural. thank god for internet.i wd have expected some prelim results by now from CDC study??
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At 7:29 am on April 27th, 2008, Janet Appleyard (&Steve) wrote: #
Dear Sean, and also Mary,
My name is Janet Appleyard. I live in Perth, Western Australia
My husband (Steve) found this blog. We both have Morgellons - contracted about October last year. (I got it from him.) I would be willing to help in any way I could with awareness/promotional stuff.My doctor has a long shared history with me- she believed me - well she saw stuff come out of my hands when i used Aquim alcohol-based cleanser.
Both my husband and I are scientists by training. I have been working in a variety of other jobs for at least 15years. Currently unable to work - psychologically(contagion issues plus anxiety). Steve is still working.
I really feel the isolation and would like to meet fellow suffers from Perth. You know - discuss treatment, strategies etc. However E-mail would be great for a start.
Just to know that I am not alone is uplifting. I really felt we were the only two. I am 44 y.o. my husband is 51. He is definintely non-social, but has a brilliant brain (which has helped so much)and has always disliked doctors.
What about a support group?
My E-mail: appleyrd@ozemail.com.auRegards, Janet Appleyard
Perth Western Australia. -
At 10:37 pm on October 26th, 2008, Gillian wrote: #
The National Health & Medical Research Council (Australian Government) acknowledges Morgellons disease.
Ph: (02) 6217 9000
Email: nhmrc@nhmrc.gov.au






